The Book

danas walk

“Dana’s Walk” by Sera Johnston, is a personal and true story of what it is like to bring up a child who has a disability. In this book, Sera shares the life story of Dana, her 14-year-old daughter who is living with Spastic Cerebal Palsy. Due to her disability, Dana found it increasingly difficult to do basic activities such as standing, sitting and walking, however, Sera never gave up to make Dana’s life better.

Sera said: “Despite previous excellent treatment, Dana
developed increasing spasticity in her legs from her cerebral palsy as she grew. She excelled academically at school but her walking ability continually deteriorated. By the time she entered high school, she was mostly in a wheelchair.

In 2010, I heard about a neurosurgical procedure called Selective Dorsal Rhizotomy (SDR) that was offered to children with a specific type of Cerebral Palsy, i.e. Spastic Cerebral Palsy, so I organised numerous fundraising events to pay for Dana’s surgery in America.”

In 2011 following a six-month fundraising campaign to get Dana to America for an operation, Sera coordinated an appeal and raised £75,000.

“The operation has changed Dana’s life and it now seemed the right time to write this book,” adds Sera.

By writing this book, Sera hopes to release and express the built up feelings of going through the ‘system’. However, not only that, she also wants to give hope and support to parents in a similar situation.

Sera finally adds, “I want to raise awareness of the barriers, negativity and emotions I as a parent faced when raising a child with a disability and would love to be able to raise awareness of the operation that has completely changed Dana’s life.”

More about the book

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